Friday, October 31, 2014

The best part about Halloween (Griswold would disagree)

                                                        Humans in costume...not so great.

Animals in costume--fantastic. One, because they're cute and hilarious and blah blah blah. Two, because they almost always look they absolutely despise being dressed up. 

Exhibit A, professor Griswold:

Photo Credit: Mom (who he does not look very happy with)

Once Dad got a hold of this photo...he decided to have some fun with it:
pretty good


better

BEST.

Unfortunately, I can't take credit for the captions...I'm not that witty.

I love my dog. 

Happy Halloween?

This is one of the worst holidays. 

It is only slightly more tolerable than other worthless holidays like Sweetest Day, Valentines day, Columbus Day, etc...

I'm basically the Ebeneezer Scrooge of Halloween. 



Unless I see someone wearing this. Then I'll be okay with Halloween this year. 

I'm not going to dress up tonight, but when people ask "what are you dressed as?" or "what are you?" I think it would be hilarious for me to just say "I have cancer" and watch reactions. I might get yelled at, or punched. 

But then i'll get to say JOKES ON YOU IDIOT I ACTUALLY DO HAVE CANCER THIS ISN'T A COSTUME LOL

Then everyone will have a laugh. Right?

It's a "dark" holiday, isn't it? 

Never claimed to have an appropriate sense of humor. 

Ruth Baby Ginsberg

Dissents. 


And is the best costume of the year. 

Thursday, October 30, 2014

Chemo + Red Wine = OH MY GOD WHY DID I DO THIS

Was feeling pretty great yesterday. 

So I got cocky--decided I'd join some friends out for a couple glasses of wine. 

CANCER WON'T STOP ME FROM HAVING FUN RIGHT GUYS AMIRITE OR WHAT HAHAHAHAHAHAHAHAHA what an idiot. 

I was told a small amount of alcohol wouldn't adversely affect the chemo drugs, but that drinking was basically "at my own risk."

Paid for it in a big way this morning. Most aggressive vomiting yet. 

Picture a drenched towel. Picture ringing that towel (stomach) out until every single drop of moisture (stomach bile) was out of it. Not my favorite way to start the day. 

BUT IT WAS TOTALLY WORTH IT (it was not worth it, sorry friends). 


No more alcohol for me. Lesson learned.

I'm a dipshit. 

Important quote of the day

"I wish I would have a real tragic love affair and get so bummed out that I'd just quit my job and become a bum for a few years, because I was thinking about doing that anyway."-Jack Handy

Tuesday, October 28, 2014

A grievance

I am as open minded as they come, and will happily support anyone in any belief system they choose, as long as it doesn't harm anyone, and as long as it isn't forced down anyone's throat. 

That stated--I do not believe that things happen for a reason. 

I don't believe there is some master plan behind my friends Marc and Becca passing away, or my Mother, or my friends Mom, or my friends Dad, or for anything that happens. 

We're floating along, and things happen, and we react and we do the best we can with what we have.

That is what I believe. 

I love the support I've received, and this may be rude. I truly apologize that in this brief moment of anger/frustration I have to come out and request:

Please do not tell troubled/sick people they are troubled/sick for a reason, which is what troubled/sick people hear when you tell them that "things" happen for a reason. 

Thanks, new friend Leah. 

"When I do good, I feel good. When I do bad, I feel bad. That is my religion."-Abraham Lincoln

The end of the beard...for now.

Today is a sad day. 

The shedding became too much for my face sweater to bare, and my hand was forced into trimming the beard down. 

I took a shower, washed my face a bit too aggressively apparently, and my entire moustache fell out.

So here we are. 

damnit

I'm thankful that I haven't had to completely shave. We'll see how long this little 5 o'clock shadow sticks around.

Now, just so you know, I'm aware of how silly it is to be upset about such a thing. It's just a beard. It's just hair. It'll grow back. Not everyone finds it attractive anyway. Blah blah blah. I know all of these things.

That being said, I'm pretty angry/upset about it. Aside from the fact that, in general, watching your hair just fall out in huge amounts is a strange and unpleasant experience, it's another item on a short list of things I can't control right now.

Another "wheel" cancer has taken control of, and will steer until I bid it farewell.

I guess it makes sense I'd cling a little harder to things I have "control" over at a time like this. Things that are familiar, comfortable, part of some identity I constructed for myself. Hell, the beard is part of the title here. Now it's gone.

I know it's just a beard. It will grow back, and when it does I'm not shaving for years.

Just a beard. Small price to pay for remission.

Just a beard--but it sure feels like more than that at the moment.

Shit.

"Loss of control is always the source of fear. It is also, however, always the source
of change."-James Frey



How I feel about cancer at this moment:
game on. 

Important quote of the day

"One thing kids like is to be tricked. For instance, I was going to take my little nephew to Disneyland, but instead I drove him to an old burned-out warehouse. 'Oh, no,' I said. 'Disneyland burned down.' He cried and cried, but I think that deep down, he thought it was a pretty good joke. I started to drive over to the real Disneyland, but it was getting pretty late."-Jack Handy


These daily quotes will be a staple henceforth. 

Monday, October 27, 2014

The deep, important quote of the day.


"Children need encouragement. So if a kid gets an answer right, tell him it was a lucky guess. That way, he develops a good, lucky feeling."-Jack Handy


You're welcome. 

Beard update, and a title I will win some day

The thinning of the beard continues.


I'm not sure the picture does the exodus justice, but the shedding has been very evident. Most noticeably in the moustache, which makes sense I guess. The rest of the beard has the ability to suffer losses without being noticed. 'Stache, not so much. 

Either way, I'm going to ride it out as long as I can. It's a strange thing, this beard--Of all the things I could/should be legitimately worried about (like having cancer), I'll definitely be upset when/if this thing falls out or has to be shaved. The beard becomes a part of your identity and I LOVE IT. Still, I will take good care of it, extend it's life as long as possible, and then wait for the day it will grow back.  

Maybe it's silly. It probably is. Oh well. The bearded life is the life for me. 

Beards. They grow on you. 

Also, Griswold's Mom showed me this:


"The World Beard and Moustache Championships."

Attending would be the equivalent of 7 year old me going to Disneyland. 

Sunday, October 26, 2014

What a weekend

Michigan sucks. 


The Lions are winning games that I, in my wildest dreams, could never have imagined. 


It is a fantastic time to be a Spartan and a Lion. 

I feel bad for people who don't like sports. 

Especially people with cancer who don't like sports. I'm sure they can find other things to distract them, but I have a hard time imagining they work as well as the games this weekend have for me. 

hahahahaha losers. 

Saturday, October 25, 2014

I told myself I wasn't going to do this

Apparently I lied. 

Early in the morning on the day of last years Michigan/Michigan State football game, a best friend of mine, Marc Simon, was killed after being struck by a car. 

Today isn't the anniversary of the event, that's November 2nd, but this day and this game will always be a reminder of what happened. I can't honestly say I remember much at all of that day. I walked around in a fog and tried to keep my mind focused on work. Broke down more than a few times, but got through it. 

In the year since, I still don't think I've necessarily come to terms with it. It still doesn't seem real. I still hear his annoying laugh, still hear him fighting with his twin brother, still hear him arguing about how Kobe Bryant is the best ever. 

Then, on days like today, when I don't hear any of those things, I miss him that much more.

Days like today are far too quiet.  

What a bunch of clowns

Since starting this blog, I've had a lot of people, strangers included, take the time to tell me that they are impressed by my "positive attitude." These are very nice things to say, and I really appreciate them. Still, I can't help but wonder if these people had ever known or met Marc if they would still say such a thing to me. 

People who know me well, and who knew Marc well, know I fall well short in the "positive attitude" category in a side by side comparison.  

I've never known someone who had so much energy, so much passion for his friends, and believed as much in being positive as Marc did. 

It's all so cliche, everything I've just said about him. 

I guess it's why it's frustrating that in his case it's also so true. 

I can't find another way to accurately describe the guy than cliches, because he was genuinely that great. 

I miss him. 

let's GOOOOO. 

______________________________________________________________
 I came across Marc's Eulogy the other day. Here it is:




Hello, my name is Marcus Calverley, and I met Marc in 7th grade. 

I’m going to begin with a quote, by Henry Ward Beecher: 

“In things pertaining to enthusiasm, no man is sane who does not know how to be insane, on proper occasions.” 

I love Marc Simon. And if there is one thing I can say about him, it is that he is easily the most enthusiastic person I have ever known. There were times, in my mind, that this enthusiasm bordered on insane. I’ve never been around someone so excited about life, or sports, or music, or movies, or literally whatever topic was being discussed at the moment. Unless you had 30 minutes to spare, you didn’t get him started on the Lakers, or the Spartans, or which 90’s boy band was the best, or about basically anything at all. 

He was loud, and he was opinionated, and he was excitable. The man could talk. And for people who didn’t know him, how animated he was probably came off as an act at times. But I think everyone here knows better. 

If there is one thing that will forever be true about Marc, it's that he was always authentic. 

I don’t want to speak for the group up here, but I think it’s safe to say there were times that we were annoyed by this enthusiasm. We get it, Marc, you like Kobe Bryant. We get it, Marc, Justin Timberlake is the coolest. We get it, Marc, Tom Izzo is the best coach ever to walk the earth. We get it. 

But what I didn’t always get, at least until the last few days, was how much I was going to miss being annoyed by Marc. 

And what I understand now, which feels too late, is that of all the things Marc was enthusiastic about: What he was most excited about--was me, and all the people up here with me, and everyone in this room. 

In the past two days, I’ve had many people approach me to tell me how envious they are of my group of friends, and how close we have all stayed as we’ve grown up and gone our separate ways. It’s a nice thing to say, and I’m proud of it. But all of that credit belongs to Marc. He never would have had it another way. Marc is the glue. His energy, and his love for us made certain we would never drift far apart. And just like Marc, always one to get his way, his far too early passing has guaranteed what he always wanted: for us to be together until our times up. 

He loved me. He loved all of us. And we loved him right back. 

If there is one thing I’ve learned from Marc that I will never forget, it’s that if anyone tells you…that there’s such a thing as having too much enthusiasm, or being too excited, or too loud---they’re either stupid, or they’re lying. Either way, you don’t need them around you. 

If we all could be a little more like Marc Simon, we’d be very lucky people. 

I’ll end with another quote, and this one may as well be by Marc himself: 

It’s by Dale Carnagie: 

“Today is life - the only life you are sure of. Make the most of today. Get interested in something. Shake yourself awake. Let the winds of enthusiasm sweep through you. Live today with gusto.” Thank you for teaching me this Marc. I’ll see you later buddy. I love you.

MICHIGAN GAMEDAY



'nuff said. 

"LET'S GOOOOOOOOOOOOOOOOOOO"-Marc Simon

Friday, October 24, 2014

Chemo Day's +2 and +3

Are the best days. 

By best I mean they offer the most opportunities to make this face:

Happy Halloween

As well as making it easy to get lots of sleep.
Like a baby...up every hour.

Again, just because you're told these days are likely to be the roughest, doesn't mean there is any real way to prepare for them.

Gotta love it. 

The retirement of the Beardylocks report

So, since the hair has made its final departure, the need for constant hair update selfies has subsided.

The beard is still worth tracking, though I'm sad to say, the shedding has begun. 

My plan is to just leave it alone and see how long it hangs on for. I'm hoping that turns out to be a long time. 

We'll see...noticing some hefty chunks falling out. 

Best part about bald head: New hats. 

Nice and warm. 
                                   

My dog works better than these meds

This guy:


Is a more effective pain/nausea/whatever remedy than anything I'm taking now. 

The drugs are nice too. 

Still, no replacement for Griswold.

Michigan Week, Day 5, almost time.

One can expect a lot of this in East Lansing tomorrow:

My god...the hair

Can't wait. 

Also, you will not find a more satisfying read today than this gem from 2007...I'd have to imagine this writer eating these words tastes about the same as what I've been spewing up. 

Enjoy. 

Hilarious

Thursday, October 23, 2014

Tonight

is one of those nights where you earn your remission. 

Damnit. 


Michigan Week, Day 4, My Family is Awesome

Spartan heads are not only placed at our places of rest in this family, but are replaced as soon as they show signs of wear. Wow. 



Michigan sucks. My Dad is the man. I miss my mom. I love my family. 

And Michigan sucks. 


LET'S GO STATE. 

Wednesday, October 22, 2014

Wasn't what I thought it would be

I woke up to a ton of hair on the pillow after last night. Then today hair started just falling out on its own. So, I made the decision to just peel off the band-aid, and shave it all now, rather than let it wilt away and leave a trail of hair behind me everywhere I went. 

Before I talk briefly about today, I want to make clear I don't give a damn about losing my hair for any reason involving vanity. I'd dress like a clown every day for these 6 months if it meant remission. 

That being said, today was pretty unsettling. Any grasp I still had on "normalcy" is gone. 

I know I'm sick, I've felt sick up to this point, but until now I haven't "looked" sick. 

During good days over the past two weeks, I'd walk by a mirror, and forget for a second that I had cancer. Not an option any longer, and I'm not necessarily saying that's a bad thing. It's just another change. 

I can only imagine what this experience is like for a woman/person more attached to their hair--its gotta be really tough. 

Even I, a person who has no connection to my hair (on my head), found myself a bit emotional during the whole experience. Another unique experience to remember. 

Another reminder that this is real. 

Another reason I'm thankful to have a beard. The beard, for now, is holding on strong. I hope that conitinues, otherwise I'll soon be "slightly overweight babyface cancer guy." No one likes that guy. 

Pictures to document the experience:

Thinning
Should have left it like this
Or like this

Heavy stuff all gone...now time to shave it
Go Green
Weird
Still weird
Will take a while to get used to this

Shiny Dome

The finished product.

Time for a shower...just looking at all that hair makes me itch

Weird filter. Tough day.

Bonus pics with my dog Griswold...it took him a second to recognize me. 




 Now I look the part.

I'm "in uniform." 

Now the game can start.

Michigan week, Day 3, status update:

There is no status update. They still rank somewhere between totally pathetic and incredibly mediocre. 

And quotes like this...my god...only make the past 6 years, and this Saturday, that much more satisfying.

My god, what planet do you people live on?

21-20-17-14-12-6. What are these numbers? The total points scored by Michigan in the last 6 meetings with the Spartans. 6 last year. SIX. There is a pattern that can be found in these numbers, but you Harvard (not actually Harvard, just where Michigan Grads think they go) folk already knew that, right?
Can we hang a goose egg on them this weekend? I think it's possible.

This is going to be fun. 


And watch this video:



LETS GO


The Cancer Center is still awesome. 
Hail, to the Cancer Center











My package from OneBadDaddy has arrived!

A very kind gentleman from the UK who makes/sells some fantastic beard products recently sent me a few samples. We came across each other on twitter, and his kindness thus far has been very touching. Two weeks in to this little blog experiment, the kindness I've received from total strangers, from many corners of the world (Kuwait, Japan, Austraila, the UK, Germany, here in The States, to name a few) has been truly incredible. I'm a lucky guy.

But enough of the mushy stuff. 

These products are incredible. 

OneBadDaddy, Makes Beards Happy

I had my choice of Patchouli & Sandalwood, Cinnamon & Vanilla, Chocolate & Coconut, Cedarwood & Lime, or Raw (unscented).

I went with the Cedarwood & Lime, and I am not disappointed. The scent is refreshing, invigorating and pleasant. The product is well made---10 hours after application, the scent was still strong, the shine still there, and the beard was looking healthy.

I haven't used the wax yet, but I will shortly. Will post about it when I do.

Please, bearded friends and friends of bearded folk, check this guys stuff out. It's fantastic.

Aside from that, he's the kind of dude worthy of supporting:

OneBadDaddy Beard Products
Thanks y'all. 

Beardylocks report, day 15

As mentioned in the previous post, the hair is most definitely on it's way out. I have a thick head of hair, so it may take a day or two to all fall out...now it's just up to me to decide when I order a preemptive strike, and just shave it off. Probably soon. 

Bye hair (on my head). No one cares about you. 

BYE

More importantly, the beard seems to be holding up. I've noticed some minor shedding, and am keeping a close (worried) eye on it, but it still looks okay,  right? RIGHT!?

If you die on me, beard, I'll kill you.

Facial expression should provide moderately accurate information as to how I'm feeling today.

#FromBothEnds

Tmi?

The time has come

Winter has arrived:

Shit shit shit shit shit shit shit

The avalanche has begun, this is my pillow after laying on it for less than 10 minutes.
weird

Oddly enough, I first noticed the chunks of hair falling out while receiving my chemo treatment in Ann Arbor...how's that for timing? 

It's unsettling, that's for sure. Up until now, I've "felt the part," but haven't "looked the part." That will change shortly. It's a drag, but I won't let it affect me much. 

It's hair...it'll grow back. 

BUT...the beard seems to be holding strong. I'll be watching it like a hawk, and if I notice it start to fall out as well then

AHHHHHHHHHHHHH WHERE IS MY BEARD AHHHHHHHHHHHHHHHHHHHHHHHHHHHH

Tuesday, October 21, 2014

Chemo, Day #2, Cycle #1

Tuesday, October 21
4:15pm
University of Michigan Cancer Center
Ann Arbor, Michigan


I don't want something like this to ever feel "routine." It doesn't, but I can see how it could become so. It's only my second time here, but I know exactly what to expect with my treatment. There were no surprises. 

Show up. Bloodwork. Wait. Name called. Vital signs. Wait. Name Called. Go to infusion chair. Wait. Port access. Nausea drugs. Wait. Chemo drugs arrive. 

I have to recite my full name and date of birth each time a new chemo drug is administered. Small annoyance to make sure I'm not getting pumped full of another patients drugs. 

Wait. Chemo starts. Giant syringes full of kool-aid. 

Also the color of my urine for the next few days

Pump them in. Wait. IV drips of Chemo. Try and stay busy. Write a blog post. Ignore that you immediately feel different/like shit. 

I want this to feel unique every time I'm here, because it is. This isn't normal. It's a toxic infusion of cancer killing drugs into my system. 

I can't shake the feeling that once all this crazy shit feels routine, feels "normal," the battle is already lost. 

My room today is private. Still took another walk around. The same gentleman with part of his jaw missing was here again--seems we're on the same schedule. Aside from the jaw, he doesn't look so good. 

Damnit, no one in here does. Everyone looks to be one gentle breeze from falling over. Is that what I'll look like in 6 months? Can't be...right?

Some look a day away from hospice care (death). I haven't forgotten what that looks like, and that's something you never get used to. 

I mentioned all this to a friend and her response was "Well yeah, it's a cancer room, whaddaya expect?" 

Valid point, I guess. I'm unsure what I expect every time I walk in here or why I'm not ready/am surprised by what I see. 

I know what this place is. I know why I'm here. Again, I know this isn't an error--that I do belong here. 

I just can't let myself get used to seeing people battling/dying from cancer around me and not let it affect me. 

The treatment itself may become routine. My experience every time can't be.  

Routine's gotta be the enemy. 

Now let's start the puke party. 






Unsure how to feel

Unsure why, but this time around I've been placed in a much more private room for my treatment. 

There are about 8 of these rooms. Small, private, closed off from the others receiving treatment. 

The "infusion atrium," where I was last time, is a well lit open space. I was happy to be placed there last time, as it allowed me to have the experience I spoke about--the realization that this wasn't some mistake, that I do belong here as well, even if what I saw around me didn't compute. 

This time, it's insulated. I still saw much older people, much sicker people, and weak looking people while waiting in the lobby. There is the look of coming death all over this place. 

In here, though, it's just me...wasting time on a computer, watching tv, waiting for my drugs. 

I'm not sure which I prefer. 

With others around, it's easier not to focus on the impending unpleasantness that's soon to be injected into me. 

Alone, the morbid realities of this disease for a lot of the people here with me aren't as "in your face." 

Blah. Just give me my Kool-aid drugs and get me the hell outta here. 

Green and White, enemy territory

We meet again.


The only Michigan gear I'll ever wear.



The looks I'm getting here today are fantastic. One old lady told me my jacket would "look lovely in the garbage."



All green, everywhere.


Michigan Football still sucks, Day 2, beard report, day 14.

Here's a fun fact:

Over the last 65 years of football, Michigan leads the series modestly, 35-27-3. Anything earlier, pre-Big Ten and before U-M ever traveled to East Lansing, is silly to consider in the overall record.

Congrats on all the W's pre-world wars.

How can you possibly coach a division 1 college football team, in today's game, without a headset?



You can't. Still, please don't fire this man. 

Little tired today. 


Beard game strong. 

Monday, October 20, 2014

Chemo, Part Deux, Tomorrow

My and my besties doxorubicin, bleomycin, vinblastine and dacarbazine are gonna chill for a while in the infusion room in Ann Arbor tomorrow. 

It's gonna be a party. BYOB. 

Bring your own buckettopukein. 

I'm hilarious. 




Here's a link to wikipedia if you wanna get all fancy book learned on the course of chemo I'm on. 


The Lymphoma Research Foundation

So, the work these people do is the reason I have the opportunity I spoke about a few posts back. There was a time, not all that long ago, that a Lymphoma diagnosis was a death sentence. That is far from the case now. 

Still, that doesn't mean there isn't more work to be done. Please support this foundation if you can. 

Champs. 
Here is where to donate, and if not, spread the word: 


Thanks guys. 

It's Michigan Week, Countdown to an embarrassment, Day 1

And so it begins. 

Yes.

Just not the Cancer Center. They're cool. 

I bet I'd be well-liked and popular in Ann Arbor if I wore this to chemo tomorrow: